2011 Conference Minneapolis, MN

Make Your Plans!  

Alive, Well, & Even Better
26th Annual Consumer/Clinician Conference
July 5–9, 2011
Sheraton Bloomington • Bloomington, MN

Why Should I Attend?

  • Understand more about the therapy that sustains you or your family member.

  • Discover how to better deal with day-to-day life.

  • Learn to communicate your health care and emotional needs with more self-assurance.

  • Meet others on home tube and/or IV feeding.

Plus! Oley Smooths the Way

  • Local emergency room information has been identified.

  • Nursing/pharmacy backup support has been arranged.

  • Hotel is aware of your supplies and shipping needs.

  • Room refrigerators are available for patients.

Where to Call for Information

To learn more about the conference, call the Oley Foundation at (518) 262-5079 or (800) 776-OLEY; email bishopj@mail.amc.edu; or check www.oley.org.

Conference Headquarters & Housing
Sheraton Bloomington, Minneapolis South
(866) 837-4278 or www.starwoodmeeting.com/Book/oley

Reserve your room today! The rate of $99/night for single/double or $109 for triple/quad is in effect through June 12. Note: to secure this rate, use the direct Internet link provided above, or mention you are with the Oley conference if you call.

Registration—Free for Consumers/Families

Register online or mail in your completed the form. All registrants are responsible for their own hotel and transportation arrangements. Please allow 7 business days before confirming your registration.

Program-At-A-Glance

Tuesday, July 5

1:00 pm – 5:00 pm Early Registration
2:00 pm – 5:00 pm Regional Coordinator Workshop
7:00 pm – 9:00 pm Welcome Reception/Awards Ceremony

Wednesday, July 6

8:00 am – 4:30 pm Registration/Information
8:30 am – 9:00 am First-Time Attendee Orientation
9:00 am – 12:00 pm Main Session I: Alive, Well, and More Informed!
12:00 pm – 2:00 pm Grand Opening of the Exhibit Hall
12:00 pm – 4:30 pm Youth Activity
2:15 pm – 4:30 pm Tube Feeding Workshop

Breakout Sessions I & II (choose 2)*
2:15 pm – 3:15 pm & 3:30 pm – 4:30 pm

1. Keeping Catheter-Related Complications to a Minimum
2. Navigating Vascular Access Challenges
3. Timing of Referral to Intestinal Failure Center
4. Living with Your Ostomy
5. Understanding Motility Disorders
6. Pain Management Treatment
7.  Integration of Care
8. Navigating Reimbursement Challenges
9. Living Longer on HPEN
        Session I: Help With Advanced Directives
        Session II: Getting Your Financial Planning Under Way

7:30 pm – 9:00 pm Oley Silent Auction

Thursday, July 7

8:45 am – 4:30 pm Registration/Information
9:00 am – 11:45 am Main Session II: Minimizing Complications: Living Better
11:45 am – 12:00 pm In Loving Memory
12:00 pm – 2:00 pm Raffle Day in the Exhibit Hall
12:00 pm – 4:30 pm Transition to Independence

Breakout Sessions III & IV (choose 2)*
2:15 pm – 3:15 pm & 3:30 pm – 4:30 pm

1. Metabolic Bone Disease
2. When the Surgeon Joins Your Team
3. Pain Management
4. Communicating with Your Medical Team
5. Functional GI Disorders
6. Food & Supplements: Choices Matter
7. Complementary/Alternative Medicine
8. Identifying Your Advocate
9. Trials and Tribulations of Traveling
10. Preparing for an Emergency

6:00 pm – 10:00 pm Picnic

7:30 pm – 10:00 pm Jammin’ Jammies

Friday, July 8

11:30 am Oley Walk-A-Thon

Saturday, July 9

10:00 am – 12:00 pm Farewell Breakfast

*Additional Breakout Sessions may be offered

Learning Opportunities Abound!

Main sessions in the morning feature formal presentations with opportunities to ask questions. Afternoon breakout sessions are smaller, informal discussion groups, which are typically more interactive. Social events such as mealtimes and receptions allow attendees to get acquainted with each other. The exchange of experiences and practical information can be life altering.

Main Sessions
Enjoy presentations coordinated to boost your understanding of home IV and tube feeding (homePEN) and increase your odds of minimizing complications.

Wednesday: Alive, Well, and More Informed!
A morning devoted to exploring interventional radiology and advanced techniques for vascular access placement and troubleshooting; emerging therapies for treating intestinal failure; and “hot topics” in home parenteral nutrition research.

Thursday: Minimizing Complications: Living Better
A plethora of information designed to help you reduce complications and navigate quality of life issues. Topics covered include metabolic bone disease and diarrhea, with a special appearance by Germ City.

Tube Feeding Workshop
Learn more about options for tubes and sites, troubleshooting complications, skin/wound care, and clogging causes and resolutions! Plenty of time is allowed for interaction with faculty.

Child Care/Youth Activities/Jammin’ Jammies
Complimentary child care will be available at the hotel, Wednesday and Thursday during the educational sessions. For children ages 7+ we offer chaperoned activities in the afternoon and a pajama party on Thursday night.

Transitioning to Independence
Learn what needs to be put in place for young adults to assume responsibility for their medical care, head off to college, live independently, etc. This program will be split into multiple sessions: one just for parents, one just for youth, and another that combines both groups.

Walk-A-Thon Raises Funds, Awareness
Join us for a short walk. Forms to gather sponsors for this event and help raise awareness are available at www.oley.org or call (800) 776-OLEY.

Medical Support—Keeping You Safe!
Medical facilities will be alerted and prepared to handle any medical emergencies that arise. The Mendota Heights branch of Coram Inc., Specialty Infusion Services will provide emergency infusion support (should you forget something, have a bag break, etc.) along with telephonic nursing/pharmacy support during the conference.

Shipping HomePEN Supplies
When shipping your supplies, separate items that need refrigeration from those that do not. Clearly indicate on the outside of the box(es) if supplies need to be refrigerated. Remember to take the July 4th holiday into account. Package(s) should be labeled as shown below.

Your Name____________, Guest
Hold for Arrival on 7/___/11
c/o Sheraton Bloomington Hotel, Minneapolis South
7800 Normandale Blvd.
Minneapolis, MN 55439
RE: Oley Conference 7/5/11-7/9/11

Getting to the Hotel/Mall of America
The hotel is 10 minutes from the Minneapolis/St. Paul International Airport (MSP), and the Mall of America. The hotel offers a free shuttle to both the airport and the mall, and free parking if you bring your car.

Travel Grants for Conference Goers!
Thanks to generous donors who believe the conference is extremely beneficial, there are several partial travel scholarships (worth up to $500) available this year to homePEN consumers who will be attending the Oley annual conference for the first time.

Applicants should not be receiving any other financial assistance from homecare companies, etc. for travel and/or lodging expenses related to attending the conference.

First-time conference attendees should write two paragraphs describing how they believe attending the conference will affect their life and submit them to us by May 1 harrinc@mail.amc.edu. The ideal candidate will also describe their plans to share information learned at the conference with consumers and/or clinicians back home. Travel must be completed and receipts received by Oley before reimbursement can be made.

Compassionate Flights
Air Charity Network and other organizations may provide free air transportation to patients whose financial resources would not otherwise enable them to travel for medical reasons. For a list of these organizations visit www.oley.org/Medical_Air_Transportation.html or call (800) 776-OLEY.

Other Ideas to Cover Travel Costs

Request a travel scholarship from a church or synagogue; your local United Way; a local Kiwanis, Rotary or Lions club; a disease-specific organization like the March of Dimes, Easter Seals or Muscular Dystrophy Association; or a wish-granting organization (see list posted at www.oley.org/Wish_Granting.html).

Get a break on your taxes! Because the conference is educational, some conference-related expenses may be tax deductible. Talk to your tax consultant or visit www.schwablearning.org.

Tips for Travel

Visit www.oley.org or call (800) 776-OLEY for tips on traveling with tube or IV feeding, including sample letters and medical forms to smooth your passage through airports, and a list of experienced consumers to answer your questions.

Many of your meals are covered at the conference! 
Including light fare at the Welcome Reception, continental
breakfast and lunch Wednesday and Thursday and
a picnic dinner Thursday.

“Whether it was ways to reduce line infections or  learning about portable pumps

to improve our quality of life, Oley provided us hope.”



“I learned things and met people that changed my life.” 

 “A whole new world opened up to me when I attended my first Oley conference.”

“As an HPN clinician, I learn more at the Oley conference than I do at nearly any other clinical meeting I attend.”