Oley Foundation

2011 Oley Annual Consumer/Clinician Conference DVD’s have arrived!

Held in Bloomington, MN (in the backyard of the Mayo Clinic) the 26^th annual conference was one of the best ever. Consumers, family members and their clinicians are welcome to borrow this set and any of the videos available at no charge. Complete list: http://www.oley.org/video_dvd.html

Loaned on a first-come/first –served basis (for one week/per request), viewers will enjoy extremely informative sessions and an Oley conference experience at their fingertips.

Day I Main Session: Alive, Well, and More Informed!

ASPEN HPN Patient Registry Sustain™ featuring Ezra Steiger, MD

Dr. Steiger is founder of the Cleveland Clinic Nutrition Support Team and Home Parenteral Nutrition and Intestinal Rehabilitation Programs and is clinically active on both. He is past president of the Ohio Chapter American College of Surgeons; past president of A.S.P.E.N.; honorary member of the American Dietetic Association; and past vice president and member of the Oley Foundation Board of Trustees.

Navigating Vascular Access Challenges featuring James Andrews, MD

As an interventional radiologist, Dr. Andrews has been involved with applying interventional radiologic techniques to the field of venous access since about 1985. He has been involved in the educational activities of the Society of Interventional Radiology and the Radiologic Society of North America in the field of vascular access.

Emerging Therapies for Treating Intestinal Failure featuring Kelly Tappenden, PhD, RD

Kelly Tappenden received her PhD in Nutrition and Metabolism at the University of Alberta, underwent post-doctoral training at the University of Texas Medical School in Houston, and joined the faculty at the University of Illinois at Urbana in 1997 as assistant professor. She was promoted to associate professor in 2003 and professor in 2008. In 2011 she was named a University of Illinois Distinguished Teacher-Scholar—the premier campus award recognizing excellence in teaching and learning. Dr. Tappenden’s research program focuses on intestinal failure and the parenteral nutrients required to prevent death from progressive malnutrition. She tests hypotheses fundamental to the field of nutrition and gastrointestinal physiology and provides insight into regulation of intestinal function. Beyond her years of service on multiple national nutrition committees, Dr. Tappenden served as president of A.S.P.E.N. in 2008-09. Currently, she is the editor-in-chief of the Journal for Parenteral and Enteral Nutrition.

Plus! Hot Topics: Research Prize Presentations
The Oley Foundation HomePN Research Prize, sponsored by Nutrishare, Inc., was established in 2007 to encourage clinical studies focused on improving the quality of life for home PN consumers.

* Central Vascular Access Device Infection Rates for Home Parenteral
Nutrition Patients featuring Melissa Leone, RN, BSN
Melissa has been a registered nurse for more than twenty-five years, with more than twenty of those spent in home infusion. She has studied central venous access devise (CVAD) outcomes in home infusion for many years, and has published those findings in industry journals. She has also spoken at national Infusion Nurses Society (INS) and National Home Infusion Association (NHIA) conferences on the subject of improving catheter outcomes in home infusion.

* Relationship between Catheter-Related Bloodstream Infection and Bathing Practices in HPN Population featuring Marianne Opilla, RN, BSN, CNSC

Marianne started at the Medical College of Virginia with the adult nutrition support team in 1989. She has been a certified nutrition clinician for more than fifteen years. Marianne started with Nutrishare, Inc., as a Clinical Care and Research Specialist in 2006. Her special interest is working with individual HPN consumers to achieve catheter longevity and reduce complications.

* Parenteral Nutrition Outcomes of Patients with SBS after Discontinuing an Intestinal Growth Factor, Teduglutide featuring Charlene Compher, PhD, RD, FADA, CNSC, LDN
Dr. Compher began working with HPEN patients in 1987 at the Hospital of the University of Pennsylvania as a Nutrition Support Clinical Dietitian Specialist. She was so interested in conducting research to help improve the nutritional and clinical outcomes of patients that she completed a PhD in 1999. Since 2001, from her faculty position at the University of Pennsylvania, she has examined dietary and medical therapies that have the potential to increase oral nutrient absorption and thus cut down on the need for PEN. Since 2008, she has also been editor-in-chief of the American Society for Parenteral and Enteral Nutrition’s Clinical Guidelines, a role that enables her to advise nutrition support providers around the world on best practices.

Day II Main Session: Minimizing Complications: Living Better

Hand Washing for Preventing Illness featuring Alan Buchman, MD, MSPH, FACN, FACP, FACG, AGAF

Dr. Buchman took his undergraduate training at Northwestern and obtained his medical degree at the Chicago Medical School. After a residency at Cedars Sinai Medical Center in Los Angeles, he completed a fellowship in Clinical Nutrition with Dr. Marvin Ament at UCLA and also received his Master's of Science Degree in Public Health. Following this, Dr. Buchman completed a fellowship in Gastroenterology at Emory University and served on the faculties of the Baylor College of Medicine and the University of Texas at Houston Medical School. Dr. Buchman has also served as Professor of Medicine and Surgery in the Division of Gastroenterology at the Feinberg School of Medicine, Northwestern University in Chicago, where he directed their Inflammatory Bowel Disease Center and was Medical Director of the Intestinal Rehabilitation Center.
Dr. Buchman has served on many editorial boards and has authored over 200 peer-reviewed articles and three books. He has received awards from several societies, including the American Gastroenterology Association, American Society for Nutrition, American College of Nutrition, A.S.P.E.N., and the Southern Medical Society. He is former president of the American Federation for Medical Research (AFMR) and has served on numerous committees, including the FDA’s Gastrointestinal Drugs Review Committee, where he has served as acting chair.

Despicable Diarrhea featuring Darlene Kelly, MD, PhD

Dr. Kelly has a background in dietetics, with a brief period in clinical dietetics prior to attending graduate school and obtaining master’s and doctoral degrees in nutrition. She subsequently graduated from medical school, with residency and fellowship in gastroenterology. She has been the Medical Director for the Mayo Clinic (Rochester) HPN Program for twenty years. She also served on the Oley Foundation Board of Trustees and as vice president for nine years, is currently Chair of the Oley Research Committee, and has attended every Oley annual conference since 1997.

Battling Metabolic Bone Disease featuring Dan Hurley, MD

Dr. Hurley is one of four brothers to have attended the Mayo Graduate School of Medicine in Rochester. He joined the Mayo Clinic staff in 1986. He was program director for the Mayo endocrinology trainee program 1992–1997, and recognized as Teacher of the Year in Internal Medicine at Mayo in 1992. In 2005, he was awarded the Department of Internal Medicine Henry S. Plummer Distinguished Clinician Award. Dr. Hurley is a member of the American Association of Clinical Endocrinologists (AACE) Board of Directors and serves as co-chair of the AACE nutrition committee. His clinical interests include skeletal bone and nutrition health and disease. His clinical experience includes caring for patients with metabolic bone disease and osteoporosis, malnutrition, obesity and bariatric surgery, and parenteral and enteral nutrition. He is also co-director for the Communication in Healthcare program, teaching communication skills in physician-patient communication and in health teams.

What’s Happening with Drug Shortages? featuring Deborah Houston, RPh, BCNSP

After twenty-seven years as a hospital pharmacist, Deborah began working in home infusion therapy. She has worked with HPN consumers for the past six years and is a Board Certified Nutrition Support Pharmacist. She has a special interest in the prevention of catheter-associated bloodstream infections, has conducted research in this area, and has formal training as an infection preventionist. Deborah has served on A.S.P.E.N.’s Clinical Practice Committee, as well as A.S.P.E.N.’s Drug Shortage Subcommittee, and is a member of the United States Pharmacopeia (USP) Expert Compounding Committee, Sterile Compounding Subcommittee (USP 797).

Breakout Sessions (small discussion groups)

Keeping Catheter-Related Complications to a Minimum featuring Marianne Opilla, RN, BSN, CNSC

Timing of Referral to Intestinal Failure Center featuring Laura Matarese, PhD, RD, LDN, FADA, CNSC; and Charlene Compher, PhD, RD, FADA, CNSC, LDN

Dr. Matarese has thirty years of experience in nutrition support, education, and program development. She is a long-time supporter of the Oley Foundation and a member of the Board of Trustees. Her primary interests are intestinal failure, intestinal rehabilitation, and intestinal transplantation. Dr. Matarese has lectured and written extensively on HPEN issues (including several articles for the LifelineLetter). She is devoted to improving the quality of life for patients with intestinal failure as well as making HPEN safe and effective.

Dr. Compher began working with HPEN patients in 1987 at the Hospital of the University of Pennsylvania as a Nutrition Support Clinical Dietitian Specialist. She was so interested in conducting research to help improve the nutritional and clinical outcomes of patients that she completed a PhD in 1999. Since 2001, from her faculty position at the University of Pennsylvania, she has examined dietary and medical therapies that have the potential to increase oral nutrient absorption and thus cut down on the need for PEN. Since 2008, she has also been editor-in-chief of the American Society for Parenteral and Enteral Nutrition’s Clinical Guidelines, a role that enables her to advise nutrition support providers around the world on best practices.

When the Surgeon Joins Your Team featuring Robert Cima, MD; Ezra Steiger, MD

Dr. Cima is a consultant in colorectal surgery at the Mayo Clinic, as well as vice chairman of the Department of Surgery in the area of Quality and Safety. He has been at the Mayo Clinic since 2003. A California native, he completed his undergraduate work and medical school in California, obtaining his medical degree from Stanford University. He completed his general surgery training and a research fellowship at Harvard Medical School, Brigham and Women’s Hospital. After his residency he completed a fellowship in colon and rectal surgery at the Mayo Clinic. He returned to the Brigham and Women’s Hospital as an associate surgeon for two years before returning to Mayo Clinic. His clinical interests include minimally invasive surgery, inflammatory bowel disease (in particular complex Crohn’s disease), and complex abdominal wall and peristomal hernia issues. His academic interests include minimally invasive surgery and patient-related outcomes from surgery in IBD and cancer. He also is very active in the quality and safety movement in the Mayo Foundation and nationally, and is actively engaged in research related to systems approach to improving patient safety and outcomes.

Dr. Steiger is founder of the Cleveland Clinic Nutrition Support Team and Home Parenteral Nutrition and Intestinal Rehabilitation Programs and is clinically active on both. He is past president of the Ohio Chapter American College of Surgeons; past president of A.S.P.E.N.; honorary member of the American Dietetic Association; and past vice president and member of the Oley Foundation Board of Trustees.

updated 11/9/11