On HPN? Get Your Provider Involved with a Valuable Database!
A little data on home parenteral nutrition (HPN) can go a long way. That’s why the American Society for Parenteral and Enteral Nutrition (A.S.P.E.N.) is encouraging HPN consumers to tell their providers about Sustain™, LLC, its new online patient registry for nutrition support therapy in the United States.
As of October 2011, twenty-one large medical centers, hospitals and home infusion agencies have enrolled in Sustain, and data on 121 patients has been entered into the registry, but more organizations need to get involved.
Sustain offers an unprecedented opportunity for HPN providers to help A.S.P.E.N. collect valuable data about consumers who are on HPN. The information entered into the registry will ultimately help organizations make better-informed patient treatment decisions, support the appropriate use of nutrition support therapy, and help improve patient outcomes.
Please note that patient privacy is a priority. The registry constitutes a Limited Data Set under HIPAA requirements and all patient identifiers under those requirements are not entered into the dataset. All persons using or receiving access to the data must sign a data use agreement through which he or she agrees to protect the privacy of the information received.
Currently, in the United States little is known about the annual use of HPN. Sustain will help generate data about therapy utilization, outcomes, and patient demographics, which will help all consumers, present and future.
A.S.P.E.N. needs your HPN providers to get involved with Sustain. Institutions, home infusion company providers, and U.S.-based clinicians who discharge patients from the hospital or care for them at home can join this patient registry program.
Share this information with your provider today! Visit the Sustain Web site at www.nutritioncare.org/sustain or contact Peggi Guenter at peggig@aspen.nutr.org for more information.
LifelineLetter, January/February 2011