There was a flurry of activity in early August as the homePEN community celebrated the second annual HPN Awareness Week. Before the event started on August 5, we had distributed 2000 buttons that read “Alive with HPN,” along with Oley contact information. Members shared these with friends, home care companies shared them with clients, companies passed them out to employees. During HPN Awareness Week, we watched the numbers soar on the Oley Facebook page (over 13,750 people “reached”!) and YouTube channel (over 1100 viewings of Oley’s “Alive with HPN” video). Several members were interviewed by their local media (see below), while Oley staff joined members to visit Albany based homecare companies. Members (from as far away as Poland and New Zealand!) sent links to share on Oley’s YouTube channel. Baxter Healthcare, which helped fund the buttons and promotional materials, shared the “Alive with HPN” video with employees, coordinated an HPN consumer panel presentation for employees in Chicago, organized a “jeans” day to raise funds for Oley, and more.. We know many efforts escaped us and we appeal to you to share your experiences with us. And if you haven’t seen the “Alive with HPN” video on YouTube, we think it’s worth a visit to a friend’s house or the library (if you don’t have Internet access at home). Enjoy!
Why Awareness? Awareness helps
create understanding, and understanding helps create
compassion. It helps dispel misinformation and assumptions.
When you share your stories, you help others see their own situation better. Sometimes your stories offer hope; sometimes people just need to know there is someone else out there like them. During Awareness Week, we posted a daily question on Facebook. One day we asked, “How long have you been on HPN?” One fan wrote that she had been on for three years. She said, “Am amazed reading your posts. I… thought that people couldn’t last long on it. Feel happier now.”
Your Help Needed in 2013!
- HPN Awareness Week,
August 4–10, 2013
- Feeding Tube Awareness Week
(founded by the Feeding Tube
February 10 –16, 2013
A photo of you or your loved one for the Oley video will help launch our efforts for 2013. Or create your own video to help people understand life with HPN or feeding tubes. Consider planning an activity, circulating a press release, posting on Facebook, organizing a fund-raiser, etc. We can help! We’ll start immediately on the video for Feeding Tube Awareness, so please send a photo or contact Lisa Metzger now, (800) 776-6539 or email@example.com.