News Coverage of Tube and IV Feeding
Below are links to stories we've found about people on tube and IV feeding at home. It is by no means exhaustive, but gives members an idea of how the general public receives news about these therapies. These stories were not created, edited or published by the Oley Foundation; the ideas and opinions stated in the articles do not represent the views of the Foundation. If you have a story to share, please send the title and link to dahlr@mail.amc.edu.
"Observation Care" vs. "Inpatient
Care" (9/7/10)
http://www.kaiserhealthnews.org/Stories/2010/September/07/hospital-observation-care.aspx
Eosinophilic Esophagitis (8/31/10)
http://www.dailycommercial.com/localnews/story/082510harger
Getting Involved in Your Medical Care
(8/31/10)
http://www.usatoday.com/yourlife/health/healthcare/2010-09-01-medtesting01_CV_N.htm
A Growing Phenomenon: Social Networks
for Patients (8/24/10)
http://www.dallasnews.com/sharedcontent/dws/fea/healthyliving/family/stories/082310dnliv-social-networking-for-cancer-patients.8209e53a.html
Enteral Nutrition and Crohn's Disease
(8/10/10)
http://www.wndu.com/healthnews/headlines/100401199.html
Feeding Dementia Patients With
Dignity (8/2/10)
http://www.nytimes.com/2010/08/03/health/03feed.html?_r=1
Food Aversion Keeps Baby from Eating
(7/29/10)
http://www.cbs42.com/content/localnews/story/Babies-Refusing-to-Eat/pBKzn1Te90umi71CddpBEw.cspx
Mom Advocates for Formula Coverage
(7/15/10)
http://www.todaystmj4.com/features/iteam/98546234.html
Double H Ranch: 20 Years of Miracles
for Kids
http://www.cbs6albany.com/video/?videoId=292409978001&lineupId=1143371293&play=now
One Week Later, Australia's First Intestinal Transplant
Patient Doing Well (7/13/10)
http://heidelberg-leader.whereilive.com.au/news/story/gutsy-big-deal-in-life-for-bundoora-man/
Intestinal Transplant Performed in Australia (7/5/10)
www.stuff.co.nz/national/health/3885106/Doctors-replace-intestine
Surgeons in Melbourne Complete Australia's First Full
Intestinal Transplant (7/3/10)
www.abc.net.au/news/stories/2010/07/03/2943911.htm?section=justin
In Cuba: PN Administered to Patient Engaged in Volunteer
Fast (interesting interview with physician) (7/3/10)
http://miamiherald.typepad.com/cuban_colada/2010/07/granmas-interview-with-fariñas-doctor.html
Motorcyclist Riding to Alaska to Promote Crohn's
Awareness (7/1/10)
www.journalgazette.net/article/20100701/LOCAL0201/307019981/1002/LOCAL
Major deficiencies in artificial feeding in UK
hospitals, inquiry finds (6/23/10)
http://news.bbc.co.uk/2/hi/health/10391886.stm
(for the original report, go to:
http://www.ncepod.org.uk/2010pn.htm)
Tailored Treatment: Use of genetic profiling to screen
for diseases increasing (6/20/10)
www.signonsandiego.com/news/2010/jun/20/use-of-genetic-profiling-to-screen-for-diseases/
Home Schooling Works Well for Teen with Crohn's (6/2/10)
http://www.the-dispatch.com/article/20100602/ARTICLES/6024012/1003/SPORTS?p=all&tc=pgall
The Hospitalist: New Breed of Specialist Steps in for
Family Doctor (5/27/2010)
http://www.nytimes.com/2010/05/27/us/27hosp.html?emc=tnt&tntemail0=y
Los
Angeles Nursing Home Fined After Resident Dies …from misplacement of a feeding
tube (5/19/10)
http://www.nursinghomeabuselawyerblog.com/2010/05/los_angeles_nursing_home_fined_1.html
New York's Best Softball Team Carries On (5/18/10)
http://www.huffingtonpost.com/2010/05/18/the-bandits-live-new-york_n_579350.html
Teen Doesn't Let Crohn's Keep Him Down (5/13/10)
http://www.pressdemocrat.com/article/20100513/COMMUNITY/100519748?p=all&tc=pgall
Severely
ill girl makes huge progress (5/10/10)
http://www.irishtimes.com/newspaper/ireland/2010/0510/1224270050129.html
Premature
babies feel more pain, says study (5/10/10)
http://www.herald.ie/national-news/premature-babies-feel-more-pain-says-study-2174372.html
AND
http://worldjewishnews.blogspot.com/2010/05/premature-babies-face-lifetime-of-pain.html
Teen Speaks About Living with Crohn's (5/7/10)
http://www.bangordailynews.com/detail/142980.html
Judge
denies child visitation request by mother accused of putting feces in daughter’s
IV tube (5/7/10)
http://www.statesman.com/blogs/content/shared-gen/blogs/austin/courts/entries/2010/05/07/mother_accused_of_putting_fece.html?cxntfid=blogs_austin_legal
Baby unable to eat, to go to hospital in Austria to be
cured (4/27/10)
http://www.weekendpost.co.za/article.aspx?id=556233
Making Your Wishes Known
at the End of Life: Advanced Directives Make a Difference (4/15/10)
http://www.nytimes.com/2010/04/16/health/15chen.html?ref=health
540 days
without eating (4/14/10)
http://www.iol.co.za/index.php?set_id=1&click_id=125&art_id=vn20100413123933697C781042
Agency for
Healthcare Research & Quality reports of hospital-acquired infection rates
(4/13/10)
http://www.nytimes.com/2010/04/14/us/14infect.html?emc=tnt&tntemail0=y
Saudi Arabia to Nebraska – baby
Jana’s long journey for treatment (4/7/10)
http://blog.unmc.edu/ihs/?p=386
Advance Directives and Outcomes of Surrogate Decision Making before Death (4/1/10)http://content.nejm.org/cgi/content/short/362/13/1211
After 7 years at Walter
Reed, Kyrgyz woman has no place to go (3/28/10)
http://www.washingtonpost.com/wp-dyn/content/article/2010/03/26/AR2010032601921.html
AND
http://www.journalgazette.net/article/20100412/FEAT/304129936/1162
Social Networks a
Lifeline for the Chronically Ill (3/24/10)
http://www.nytimes.com/2010/03/25/technology/25disable.html
George Karl 'I hope
I'm ready' (3/17/10)
http://sports.yahoo.com/nba/blog/ball_dont_lie/post/George-Karl-I-hope-I-m-ready-?urn=nba,228612
Increased Safety Needed in Assisted
Living (3/8/10)
http://www.turkgeek.net/increased-safety-in-assisted-living/
Suspect gene linked to food allergy --
Eosinophilic Esophagitis (3/8/10)
http://www.google.com/hostednews/ukpress/article/ALeqM5jMvD4QdFg8icqoU4v5FMuuHPRwzA
Gene Site Found for Food Allergy
(3/7/10)
http://www.chop.edu/news/gene-site-linked-to-food-allergy.html
Balloon of hope (3/7/10)
http://bdtonline.com/lifestyles/x275795944/Balloon-of-hope
Local boy inspiration to family after
years of surgery (3/6/10)
http://www.reviewonline.com/page/content.detail/id/524646.html?nav=5007
Meet speech pathologist James Hansen
(3/4/10)
http://www.albertleatribune.com/news/2010/mar/04/meet-speech-pathologist-james-hansen/
Bishops’ directive limits choices at end
of life (3/4/10)
http://www.pantagraph.com/news/opinion/mailbag/article_eaab8c18-271c-11df-a834-001cc4c03286.html
Life With a Pouch on the Side (3/2/10)
http://well.blogs.nytimes.com/2010/03/02/life-with-a-pouch-on-the-side/
US bishops' directive on feeding tubes
meet criticism (3/2/10)
http://www.cathnews.com/article.aspx?aeid=19667
Roger Ebert Speaks Again (3/1/10)
http://www.dbtechno.com/entertainment/2010/03/01/roger-ebert-speaks-again/
Wish granted, little Donavan went to Disney World (2/28/10)
http://www.digitaljournal.com/article/288319
Ray of hope for Sienna Smith, of
Firthmoor, in Darlington (2/26/10)
http://www.thenorthernecho.co.uk/news/5030163.Doctors_give_ray_of_hope_to_two_year_old/
Learning
to eat: Helen DeVos Children's Hospital helps kids through behavior modification
(2/15/10)
http://www.mlive.com/news/grand-rapids/index.ssf/2010/02/learning_to_eat_helen_devos_ch.html
Following up after GIFT of life -- Team works on transition for teen HomePENers
to adult care (2/13/10)
http://www.healthzone.ca/health/newsfeatures/article/762983--following-up-after-gift-of-life
Feeding Tubes May Be Over-Used In
Dementia Patients (2/12/10)
http://www.nursinghomesabuseblog.com/2010/02/articles/clogged-feeding-tubes-1/feeding-tubes-may-be-overused-in-dementia-patients/
Little
Nathan: Disorder prevents 3-year-old from swallowing solid food (2/3/10)
http://www.courierpress.com/news/2010/feb/03/little-nathan/
Putting
a Face on Crohn's Disease (1/14/10)
http://www.wkowtv.com/Global/story.asp?S=11826762
Hundreds
Rally to Protest State Budget Cuts in Maine -- including a tube feeder
(1/12/2010)
http://www.mpbn.net/Home/tabid/36/ctl/ViewItem/mid/3478/ItemId/10551/Default.aspx
Crohn's disease | Healthy on the
outside, suffering on the inside (1/10/10)
http://fredericksburg.com/News/FLS/2010/012010/01102010/501924/index_html?page=1
Young
Girl Finds Escape in Figuring Skating from Extreme Allergy (1/9/10) 12-Year-Old
Battling Dangerous Food Allergy Finds 'Home' on Ice
http://abcnews.go.com/GMA/Weekend/12-year-extreme-food-allergy-finds-solace-skating/story?id=8723732
Cody
'definitely on the mend': 19-year old in New Zealand on HPN (1/9/10)
http://www.stuff.co.nz/nelson-mail/news/3217991/Cody-definitely-on-the-mend
Roger Ebert's Journal: Nil by Mouth (1/6/10)
http://blogs.suntimes.com/ebert/2010/01/nil_by_mouth.html
Care
home patients given feeding tubes 'to save on staffing' (1/6/10)
http://www.timesonline.co.uk/tol/life_and_style/health/article6977163.ece
Stroke
risks prompt hearing (1/4/10)
http://www.theday.com/article/20100104/NWS12/301049933/1044
Pfizer
Acquires a Stem-Cell Therapy for Inflammatory Bowel Disease (12/21/09)
http://www.nytimes.com/2009/12/21/business/21pfizer.html?_r=3&ref=health
One
couple's journey of love (12/20/09)
http://www.heraldtribune.com/article/20091220/ARTICLE/912199991/-1/NEWSSITEMAP
The Long
Shadow of the Bishops -- More coverage of the US Bishops' Ruling on Tube Feeding
at End of Life (12/17/09)
http://www.huffingtonpost.com/barbara-coombs-lee/the-long-shadow-of-the-bi_b_396193.html
Survivor
of 6 transplants gives thanks (12/14/09)
http://news.cincinnati.com/article/20091214/NEWS01/912150310/Survivor+of+6+transplants+gives+thanks
Carry a
list of medications you take, says patient-safety group (12/14/09)*
http://seattletimes.nwsource.com/html/health/2010502091_drugerror14m.html
*For handy forms try:
http://www.wapatientsafety.org/mymedicinelist/examples.html
Your
Final Wish Isn’t Always Your Doctor’s Command: Ann Woolner (12/9/09)
http://www.bloomberg.com/apps/news?pid=20601039&sid=amr0P2SxeQlE
Getting
her life BACK -- A young woman with Colitis (12/7/09)
http://www.stcatharinesstandard.ca/ArticleDisplay.aspx?e=2209699
Year-Round Camp Offers Opportunities for Nurses, Families (12/7/09)
http://news.nurse.com/article/20091207/CA02/112070079
After
Life of Surgeries, Hope for One Final Operation (12/6/09)
http://www.nytimes.com/2009/12/07/nyregion/07neediest.html?_r=2
Mended
Little Hearts Christmas Party shows group has heart (12/6/09)
http://newsok.com/city-event-shows-group-has-heart/article/3422982
Teen
struggles with rare disorder (CIPO) (12/1/09)
http://www.wishtv.com/dpp/health/pediatrics/teen-struggles-with-rare-disorder1259676525134
For some
kids, holidays are food for thought (11/30/09)
http://www.nj.com/gloucester/index.ssf?/base/news-14/1259559612159420.xml&coll=8
Patient
counts his hyperbaric blessings (11/26/09)
http://www.dailyinterlake.com/news/local_montana/article_ebf9f464-da4c-11de-b77f-001cc4c002e0.html
CRBSI
surveillance saves money (11/21/09)
http://www.ivteam.com/crbsi-surveillance-saves-money/
Squeamish teachers turn away tube-fed child (11/19/09)
http://www.thisisderbyshire.co.uk/news/School-squeamish-poorly-poorly-boy/article-1527517-detail/article.html
Bishops
Rule on Medically Assisted Nutrition and Hydration at End of Life, and Other
Issues (11/18/09)
http://www.usccb.org/comm/archives/2009/09-242.shtml
Where’s the
compassion? Funding cut for 'disabled' adults (11/16/09)
http://blogs.kansascity.com/unfettered_letters/2009/11/wheres-the-compassion.html
Radioactive surprise at hospital: Iodine lodged in
patient’s feeding tube, VA reports (11/16/09)
http://www.signonsandiego.com/news/2009/nov/16/radioactive-surprise-at-hospital/
Gut
wrenching: Australia prepares for its first intestinal transplant
(11/14/09)
http://www.smh.com.au/national/gut-wrenching-20091113-iepq.html
Man uses
remote to control his 'bionic bottom' (11/13/09)
http://www.telegraph.co.uk/news/newstopics/howaboutthat/6560971/Man-uses-remote-to-control-his-bionic-bottom.html
University of Arizona surgeons
perform multi-visceral transplant in 1-year-old Phoenix girl, a first for
Arizona and Southwest (11/12/09)
http://www.healthnewsdigest.com/news/Surgery_540/Baby_Receives_a_Three-Organ_Transplant_at_University_Medical_Center.shtml
Related story:
Gilbert baby undergoes 3-organ transplant (11/13/09)
http://www.eastvalleytribune.com/story/147153
For Patients Who Can't Eat,
Dr. Stanley Dudrick's Intravenous Feeding System Is a Lifeline (11/10/09)
http://www.sparkchamps.com/2009/11/for-patients-who-cant-eat-dr-stanley.html
Kerry Legislation Would Provide Medical Coverage for
Food and Supplements for Children with Rare Health Disorder
(11/10/09)
http://kerry.senate.gov/cfm/record.cfm?id=319840
Database to hold health directives
(11/9/09)
http://www.statesmanjournal.com/article/20091109/HEALTH/911090323/1093
New Homecare Accreditation Requirement Creating Patient Access Issues
-- including enteral and parenteral nutrition supplies
(11/3/09)
http://www.reuters.com/article/pressRelease/idUS146178+03-Nov-2009+PRN20091103
Laughter is the best medicine (10/29/09)
http://news.bbc.co.uk/2/hi/health/8329828.stm
No
guarantees: 3 tales of insurance disaster (10/26/09)
http://www.msnbc.msn.com/id/33441437/ns/health-health_care/
Event to raise awareness, money for little-known disease
(EE) (10/25/09)
http://www.hometownlife.com/article/20091025/NEWS06/910250409
ALL IN A DAY:
Crohn's patient who lives on parenteral nutrition gets by with family,
friends and a strong routine (10/24/09)
http://archives.timesunion.com/mweb/wmsql.wm.request?oneimage&imageid=8902106
Prescott woman gets rare transplant
(10/13/09)
http://www.dcourier.com/main.asp?SectionID=1&SubSectionID=1&ArticleID=73420
CBS Coverage of a Colonoscopy
(9/10/09)
http://www.cbsnews.com/stories/2009/09/10/health/cbsdoc/main5300270.shtml
Hiring a Nurse to Manage TPN in Hospital Lowers
Infection, Saves Money (9/7/09)
http://www.imn.ie/index.php/current-issue/news/2245-mater-initiative-saves-money
Toddler overcomes dangerous medical condition
(no date available)
http://millelacscountytimes.com/index.php?option=com_content&task=view&id=2339&Itemid=87
CEOs Reap Benefits While Insurance Companies
Systematically Deny Care to Ill Policy Holders (8/6/09)
http://www.commondreams.org/newswire/2009/08/06
End of Shift: The 24-Hour Shift
Los Angeles County nurse provides around-the-clock RN-level care for her
medically fragile son (3/23/09)
http://news.nurse.com/article/20090323/CA02/103230028
Updated 9/7/10