Reach Out and Talk to a HomePEN Consumer -- Toll Free!
Toll Free Numbers Available to Canadian Consumers!
Thanks to a donation by Calea, the Oley Foundation is able to offer it’s
toll-free lines to consumers in Canada. The new plan also offers lower rates,
but we no longer have free calls on Fridays.
Oley circulates two toll-free numbers to experienced homePEN consumers on a monthly basis. The goal is to make speaking with fellow lifeliners more affordable, and to provide Regional Coordinators with a better grasp of their regions needs.
Advice given by volunteer coordinators represents the experience of that individual and should not imply endorsement by the Oley Foundation.
Due to the expense, a per-minute fee charged to Oley, we ask that you limit your conversations to 30 minutes. The schedule of toll-free numbers and volunteer coordinators is also published in each LifelineLetter. Comments? Call (800) 776-OLEY.
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Oley Foundation Toll-Free Number Schedule |
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Apri 1-30, 2008 |
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Gail Brenenstuhl |
EST |
After numerous surgeries, Gail was left with 60 cm of small intestine and no colon. She has been PN dependent since 2003. She boats in the summer, travels a little, and until she had shingles in the fall, was active in a health club. The shingles has lasted months, but Gail expects to be active again soon and is looking forward to sharing her knowledge and experiences with you. |
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Ann Weaver
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CST |
Ann is married and has two sons, ages 20 and 13, the younger of which has SBS due to Hirschsprung’s disease. He has been on HEN since birth and has an ostomy. Ann has cared for central line, NG tube, G tube, and ostomy. She looks forward to talking to other parents. |
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May 1-31, 2008 |
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Bruce & On Braly
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PST |
Bruce and On’s son Matthew (now 19) has been on HPN since the age of nine. He has SBS due to malrotation of the gut and uses a CADD pump. They have traveled abroad with HPN and look forward to sharing their experiences with you. |
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Rick Davis |
MST |
Rick knows about tube feeding (HEN). He wants you to call. He is 63, cannot swallow, has been 100% dependent on HEN for 6 years, and is very active. He hikes and skis extensively. He and his wife also travel frequently and enjoy being retired. He looks forward to hearing from you. |
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June 1-30, 2008 |
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Mary Friel
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EST |
Mary has been on HPN for 16 years due to short bowel syndrome and Crohn’s disease (37 years); she has attended six Oley conferences. Mary is active in community groups, travels with her HPN, and keeps busy with family and friends. Please call evenings 7–10 pm EST as Mary works during the day. |
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Sue Koprucki
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EST |
When Sue’s daughter Emily was diagnosed with a form of pseudo-obstruction at birth and started on HPEN, Sue felt frightened, isolated, and frustrated. Connecting with families in similar situations helped her find what she needed to make life work for her family. Emily now has short bowel and an ostomy. Sue has experience with lines, ports, g-tubes, and ostomies, as well as working with schools. |
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July 1-31, 2008 |
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Chuck Lindley
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EST |
Chuck is a hospital pharmacist and the father of Mason, who
suffered an accident that left him HPEN dependent and with an ileostomy.
Mason passed away in 2005, but his legacy continues through the Mason
Lindley Miracle Foundation, which supports children and families facing
medical challenges through music. |
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Roseline Wu
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EST |
A lifetime of abdominal problems and nearly twenty years of HPN have led Rose and her husband, Bill, to take each new day as a gift. Rose and Bill benefit from a strong family of lifeliners in their area and try to keep them connected. They have attended several Oley conferences and have traveled with HPN. Rose was the first recipient of the Lenore Heaphey Grassroots Education Award in 1994. |
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22nd Annual Conference Highlights 21st Annual Conference Highlights 20th Annual Conference Highlights |
Be sure to ask volunteers about the benefits of attending an Oley
Conference.
View
details on the 23rd Annual Conference June 26 - June 30, 2008, San
Diego, CA
Note: HICKMAN® catheter/PORT-A-CATH® are registered trademarks of C.R. Bard, Inc. and its related company, BCR, Inc. Updated 4/15/08 |
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