Participate in Major HPN QOL Study
You are in a unique position to help the medical field understand the impact that home parenteral nutrition (HPN) has had on your life. Because you experience this therapy on a day-to-day basis, we are asking you to participate in a widespread study of the effect of HPN on quality of life.
The Oley Foundation is collaborating with the European Home Artificial Nutrition Workgroup in this study. The study will promote understanding of the issues that are important to you, the consumer, and will hopefully make HPN practices better for you, as well as for those elsewhere. It may also make it possible to compare the effects of techniques such as small intestinal transplantation with life on HPN to allow consumers to make more informed decisions, and to compare HPN practices in the United States with those in European countries. Developing this understanding further could also help us make Oley of greater benefit to you.
How to Participate
This study is open to all adult HPN consumers. You do not have to be an Oley member to participate. We heartily encourage your participation. For details and/or to participate, contact the Oley office at 800-776-OLEY or e-mail Cathy Harrington at harrinc@mail.amc.edu details. All responses will be kept confidential. This study has been approved by the Albany Medical Center Institutional Review Board (IRB).