Centers of Experience

Because Oley receives many inquiries from patients seeking specialized medical care, we have compiled a list of medical centers with expertise in short bowel syndrome, nutritional and/or surgical management of intestinal failure and/or intestinal transplantation. The centers are listed alphabetically by the state they are located in.  We realize there are many other capable clinicians/centers offering optimal care and could not begin to capture them all. This list reflects centers that work closely with the Oley Foundation. The Oley Foundation cannot endorse or refer members to individual physicians or medical centers, including those listed below. Questions, comments or additions can be sent to bishopj@mail.amc.edu. 

A separate page lists feeding programs that help children learn to eat by mouth

Mayo Clinic
Scottsdale, Arizona - (Brief Program Description)               

HomePEN management, dietary management, adult program

John DiBaise, MD (gastroenterologist, PN and EN management)  

Lori Roust, MD (endocrinologist, PN management)

Kevin Ruff, MD (gastroenterologist, EN management)

Lauri Rentz, RN, CGRN

Michelle Mannebach, RD

Sherry Tarleton, RD, CNSC
 

Phone: (480 301-6990)
Email: dibaise.john@mayo.edu          

UCLA Medical  Center
Home Parenteral Nutrition Program
Dupont Transplant Center
Los Angeles, California - (Brief Program Description)
                                                                HomePEN management, surgical reconstruction & intestinal transplantation

Marvin Ament MD, Director TPN Program
Laurie Reyen, RN, Clinical Nurse Specialist TPN  Program
Douglas Farmer, MD, FACS, Director Intestinal Transplant Program, Co-Director Intestinal Failure Center
Sue McDiarmid, MD, Director Pediatric Liver Transplant
Sherily Gordon, MD
Joanna Colangelo RN, Transplant Coordinator

Nutrition Program
(310) 825-4823
Email: nsler@mednet.ucla.edu
Transplant
(310)794-6487
Email: jcolangelo@mednet.ucla.edu      

http://www.uclahealth.org/

British Columbia Home Parenteral and Enteral Nutrition Program
British Columbia and the Yukon, CANADA

Scott Whittaker MD – Medical Director – HPN & HEN
Sheila Sakich RN – Nurse & Patient Educator – HPN
Andrée Richardson RD, CNSC – Dietitian – HPN & HEN
Linda Jang BSc Pharm – Pharmacist – HPN
Holly van Heukelom RD, CNSD, MHA – Coordinator – HPN & HEN
Carolyn Hawley MA – Secretary – HPN & HEN

BC HPEN Programs:
Phone: 1-877-806-9353 (604-806-8353)
Email: homePEN@vch.ca
Website: www.bchenhpn.com

St Michael’s Hospital
Toronto Ontario Canada
Khursheed Jeejeebhoy, MD                                                    HomePEN management
Email: khushjeejeebhoy@compuserve.com

Georgetown University Center for Intestinal Care and Transplant*
Washington D.C.

Thomas Fishbein, MD, Director                                    HomePEN management, intestinal transplantation
Stuart Kaufman, MD, Medical Director
Erin Fennelly, RD, CNSD
(202) 444-6396
(866) 543-8977
http://www.georgetownuniversityhospital.org/body.cfm?id=115
e-mail:  EMF25@gunet.georgetown.edu                             

Mayo Clinic
Jacksonville, Florida                    HomePEN management                                                     
Phone: (904) 953-2221                                                           
 

University of Miami Miller School of Medicine
Jackson Memorial Transplant Center - (Brief Program Description)
Miami, Florida                                   Surgical reconstruction and intestinal transplantation

Andreas Tzakis, MD, Phd, Professor of Surgery, Director, Division of Transplantation, Chief, Division of Liver and Gastrointestinal Surgery

Seigo Nishida, MD , Associate Director, Adult Liver/GI Transplant..

Teresa Bueno, RN
Email:TBueno@um-jmh.org
Scott Koonce, RN
Email: SKoonce@um-jmh.org
Lesli H. Kravetz, RN  
Email:LKravetz@med.miami.edu
Vivienne Maragh, RN 
EmailVMaragh@um-jmh.org

Phone: (305)355-5000                                                    

Children's Healthcare of Atlanta @ Egleston/ Emory Children's Center
Atlanta, Georgia (brief program description)

Conrad R. Cole M.D, M.P.H, M.Sc.                                Pediatric HomePEN
Surgical and Nutritional Management                                    
Megan Durham MD  - Surgery
Addie Lofton-Hammid RN  - Nurse Coordinator

Gastroenterology, Hepatology & Nutrition
Department of Pediatrics
Emory University School of Medicine

Phone: (404)778-2400 / (404)727-9990
http://www.pediatrics.emory.edu/divisions/gastroenterology/resource.html

Children's Memorial Intestinal Rehabilitation and Transplant Program
Chicago, Illinois     -      (Brief program description)
Valerie Cochran, MD, Medical Director, Pediatric Intestinal Rehabilitation and Transplant Program

Riccardo Superina, MD, Division Chief, Transplant Surgery, co-director,
Siragusa Transplantation Center

Anton Skaro, MD, Transplant Surgeon,
Siragusa Transplantation Center                           HomePEN management, surgical reconstruction & intestinal transplantation

Juan Carlos Caicedo, MD, Transplant Surgeon,
Siragusa Transplantation Center

Carlos Caicedo, MD, Transplant Surgeon,
Siragusa Transplantation Center

Phone: (773) 880-6363
http://www.childrensmemorial.org/depts/siragusa/intestinal/overview.aspx (Pediatric)

Northwestern Intestinal Rehabilitation and Transplant Center
Northwestern University Feinberg School of Medicine,
Northwestern Memorial Hospital
Chicago, Illinois     -      (Brief program description)

Jon Fryer, MD,
Surgical Director,
Adult Intestinal Rehabilitation and Transplant Program    HomePEN management, surgical reconstruction  & intestinal transplantation

Phone: (773) 880-6363
www.ibdcenter.org  (Adult)

Transplant/Indiana University Health
Indianapolis, Indiana   –  (Brief program description)

Provides comprehensive management, surgical treatment and transplantation for adults and children

Rodrigo Vianna, MD Surgical Director  

Phone: (800) 382-4602
Email: rvianna@iupui.edu 
http://iuhealth.org/transplant

University of Louisville
Louisville, Kentucky

Steve McClave, MD                                                        HomePEN management
Phone:  (502) 852-7963                                                          
Email:  samcclave@louisville.edu

Children’s Hospital Boston -(Brief Program Description)
Boston, Massachusetts

Tom Jaksic, MD, PhD, Surgical Director                                    Intestinal reconstruction
Phone: (617) 355-9600
tom.jaksic@childrens.harvard.edu

 

Chiristopher Duggan, MD, MPH, Medical Director
Phone: (617) 355-7612
christopher.duggan@childrens.harvard.edu

Sharon Collier, RD - Dietitian
Kathleen Gura, PharmD, BCNSP - Pharmacist
Julie Iglesias, RN, MSN, CPNP - Nurse Practitioner - CAIR Coordinator
Daniel Kamin, MD - Medical Director - Intestinal Transplantation
Heung Bae Kim, MD - Surgical Director - Intestinal Transplantation
Clifford Lo, MD, PhD - Home Parenteral Nutrition Physician
Mark Pudder, MD - Surgeon
Denise Richardson, RN - Home Parenteral Nutrition Nurse

Mayo Clinics
Rochester, Minnesota   - (Brief Program Description)

Darlene Kelly, MD PhD, Associate Professor of Medicine                     HomePEN management
Phone: (507)284-4824
Email: Kelly.darlene@mayo.edu

http://www.mayoclinic.org/                                 

The Intestinal Rehabilitation Center
Children’s Mercy Hospital in Kansas City Kansas City, Missouri

Joel Lim, MD – Medical Director
Richard Hendrickson, MD – Surgical Director                     HomePEN management, surgical reconstruction & intestinal transplantation

Phone: (800) 806-8544
 

University of Nebraska Medical Center Intestinal Rehabilitation Program
Omaha, Nebraska  -  (Brief program description)

Surgeon
David F. Mercer MD, PhD, FRCS(C) Director, Intestinal Rehabilitation Program  
Stephen Raynor MD
Jon Thompson MD
Hepatologist
Fedja Rochling MD, Medical Director, Adult Intestinal Rehabilitation Program Transplant  
Nurse Coordinator
Brandi K. Gerhardt RN, BAN
Jenna Kopp RN, BSN                                         Surgical, nutritional management & intestinal transplantation
Dietitian
Angie Iverson RD
Brandy Sunderman RD
Becky Weseman RD, SNSD, LMNT
Feeding Therapy
Cathleen Piazza PhD
Valerie Volkert PhD, BCBA
Social Work
Jodi Gentleman
Administrative
Bridget Bauman

Phone: (402)559-3382
Email: organ@unmc.edu

http://www.nebraskamed.com/transplant/intestine/rehabilitation_program/

Memorial Sloan Kettering Cancer Center
New York, New York

Moshe Shike, MD                                                         HomePEN management
Phone: (212) 639-7230                                                           
Email: shikem@mskcc.org

Mount Sinai School of Medicine
Recanati/Miller Transplantation Institute
Intestinal Rehabilitation and Transplantation Program
New York, New York      (Brief Program Description)

Kishore Iyer, MD                                                             Surgical, nutritional management &intestinal transplantation
Director, Adult & Pediatric Intestinal Transplant
Email:  Kishore.Iyer@mountsinai.org
Phone: (212) 659-9300

Christine Chamberlain, RN
Senior Coordinator, Intestinal Rehabilitation and Transplantation
Email: Christine.chamberlain@mountsinai.org
Phone: (212) 659-9300
 

Center for Human Nutrition
East Carolina University
Division of Gastroenterology, Hepatology and Nutrition     
Greenville, North Carolina                                                HomePEN Management

Hossam Kandil , MD, PhD
Laura E. Matarese, PhD, RD, LDN, FADA, CNSC

Phone: (800) 722-3281

Web page
www.ecu.edu/cs-dhs/im/Gastroenterology/CHN-Home.cfm

Cleveland Clinic Foundation
Intestinal Rehabilitation Program and Transplant Program
Cleveland, Ohio   - (Brief Program Description)   
Medical and nutritional management of intestinal failure, HomePEN management, Intestinal transplantation and surgical reconstruction

Donald Kirby, MD FACP, FACN, FACG, AGAF, CNSP, CPNS, Director, Nutrition Support; Medical Director, Intestinal Rehabilitation and Transplant
Ezra Steiger, MD, FACS, CNSP, Co-Director, Nutrition Support Team and Rehabilitation Program
Email:  steigee@ccf.org
Le-Chu Su, MD, PhD, Gastroenterologist, Digestive Disease Center
Cristiano Quintini, MD, Small Bowel Transplant Surgeon, Intestinal Rehabilitation and Transplantation Program
Neha Parekh, MS, RD, LD, CNSD, Nutrition Manager, Intestinal Rehabilitation
Emily Chhatriwalla, RD, LD, CNSD, Nutrition Coordinator, Intestinal Rehabilitation and Transplantation Program
Mary Jo Porter, RD, LD, Nutrition Coordinator, Intestinal Rehabilitation and Transplantation Program
Elizabeth Lennon, PA-C, Physician Assistant, Intestinal Rehabilitation and Transplantation Program
Christine Shay-Downer, RN, Transplant Coordinator, Intestinal Rehabilitation and Transplantation Program 
Jackie Lazzaro, Department Coordinator, Intestinal Rehabilitation and Transplantation Program
Intestinal Rehabilitation Program phone: (216)445-2090
Intestinal Transplant phone: (216) 445-1748
Website: http://cms.clevelandclinic.org/digestivedisease/body.cfm?id=119 

Nationwide Children’s Hospital
Columbus, Ohio - Brief Program Description                                                                HomePEN management Peds.GI  

Jane Balint, MD
Molly Dienhart, MD
Steven Teich, MD
Sandra Jacobs, CNP
Patti Kegley, RN
Lia Headings, RN
Mary Kay Sharrett, RD
Steve Plogsted, PharmD
Lynn Gutches, MSW
Mindy Johnson, Administrative Assistant
For Appointments: (614) 722-3485                           

http://www.nationwidechildrens.org/intestinal-support-service

Cincinnati Children’s Hospital Medical Center Nutrition & Intestinal Care Center
Cincinnati, Ohio      - (brief program description)

Samuel Kocoshis MD, Medical Director                       HomePEN management
Email: Samuel.kocoshis@cchmc.org

Surgeons:

Maria Alonso, MD
Frederick Ryckman, MD
Gerry Hennies, RN
Kim Klotz, RN
Kathie Yeary, RN
Trayce Gardner, MEd, RD, CSP, LD
Susan Smith, RD, LD, CNSD
Renee Wieman, RD, CSP, LD, CNSD

Phone: (513)636-4415                                   
   
www.cincinnatichildrens.org/svc/alpha/n/nutrition-intestine

Children’s Hospital of Pittsburgh
Intestinal Care Center
Pittsburgh, Pennsylvania
 HomePEN management, surgical reconstruction & intestinal transplantation

Jeffrey A. Rudolph, MD Director, Intestinal Care and Rehabilitation Center
R. Cartland Burns, MD Co-director of Intestinal Care, Pediatric Surgeon.
Robert Squires, Jr, MD, Clinical Director, Pediatric Gastroenterology
Feras Al-Issa, MD, Pediatric Gastroenterology
Sharon Strohm, MBA, RD, Manager, Clinical Nutrition
Jane Anne Yaworksi, MSN, RN, Clinical Nurse Specialist for Nutrition Support & Intestinal Care (outpatient)
Danielle Sebbens, DNT, CRNP, Intestinal Care Nurse Practioner (in-patient)
Jennifer Halper, LSW, Social Worker

Phone: (412) 692-6906

http://www.chp.edu/CHP/icare
 

Malnutrition Clinic
Centre Medical Surgical Associates
Mount Nittany Medical Center
Pennsylvania State University
State College, Pennsylvania

Gordon L. Jensen, MD, PhD                                        HomePEN Management

Phone: (814) 234-8800
Email: GLJ1@psu.edu
 

University of Pittsburgh Medical Center
Thomas E. Starzl Transplantation Institute
Intestinal Rehabilitation and Transplant Center*
Pittsburgh,  Pennsylvania     -       (Brief Program Description)

                                                        HomePEN management, surgical reconstruction  & intestinal transplantation

George Mazariegos, MD, Co-Director, Pediatric Transplant
Kareem Abu-Elmagd, MD, PhD, FACS, Director, Intestinal Rehabilitation and Transplantation Center
Stephen J.D. O’Keefe, MD, MSc, FRCP, Medical Director, Small Bowel Transplantation and Rehabilitation Unit

Phone: (412)647-5800
Email: www.sti.upmc.edu

http://www.transplant.upmc.com

Medical University of South Carolina
Charleston, South Carolina

Prabhakar Baliga, MD                                                                   HomePEN management
Debra Bernardina RN, CCTC
Kara Cole RN, MSN
Stacy Sipple, RN
Christina Thompson RN

Phone: (843) 792-0332                                                           

Tennessee

Vanderbilt University Medical Center (VUMC)
Center for Human Nutrition
Nashville, TN   - (Brief Program Description)

Doug Seidner, MD, FACG, CNSP                                                   HomePEN management
Director, Center for Human Nutrition; Gastroenterologist
E-mail: douglas.seidner@vanderbilt.edu

Vanessa J. Kumpf, PharmD, BCNSP
Intestinal Rehabilitation Pharmacist
Phone: (615) 936-1288
 vanessa.kumpf@vanderbilt.edu

Bryan Collier, DO, CNSP, FACS
Co-director, Center for Human Nutrition; Surgeon
Lawrence Gaines, PhD, Psychologist
Amy C. Lynch, MS, RD, CNSC, LDN, Intestinal Rehabilitation Dietitian
Kimberly Currier, RN, MSN, NP, Nurse Practitioner
Tanya Givens, RN, Research Nurse
Mary Smith, RN, Nutrition Support Nurse

Phone: (615) 936-1288
Facsimile: (615) 396-0006

http://www.mc.vanderbilt.edu/vchn


Intermountain General Surgery & Trauma
Salt Lake City, Utah
Tom White, MD                                                            HomePEN management
Phone: (801) 507-2030
                   

University of Virginia
Digestive Health Center of Excellence
Charlottesville, Virginia                    (Brief Program Description)
Carol Rees Parrish MS, RD                                        HomePEN management
Nutrition Support Specialist
E-mail: crp3a@virginia.edu

Phone: 434-924-2286
Fax: 434-982-3957

Robert Fitzgerald, Administrative Assistant
Phone: 434-243-4749
Email: rf7r@virginia.edu

www.ginutrition.virginia.edu

University of Seattle
Seattle,  Washington

Jorge Reyes, MD
Simon Horslen, MD                                                                 HomePEN management Peds GI, Transplantation

University of Wisconsin Shortgut/Intestinal Failure Clinic
Madison, Wisconsin  

Peter Nichol, MD - Director                                                      Pediatric Nutrition Support, Transplantation

schmieden@surgery.wisc.edu
P 608.263.7697
F 608.265.5963

http://www.uwhealth.org/pediatric-surgery/short-gut-clinic/31200


On the Move!  We promise to keep the list current.  We also invite you to contact us at any time for additional information, to brainstorm options, etc.   

 Thank you to Carol Parrish, RD, University of Virginia Health Care Systems, for publishing Centers with Short Bowel Expertise in Practical Gastroenterology which became the centerpiece for this effort. 

Last Updated:  January, 2012