Medical Expertise

Because Oley receives many inquiries from patients seeking specialized medical care, we have compiled a list of medical centers with expertise in short bowel syndrome, nutritional and/or surgical management of intestinal failure and/or intestinal transplantation. The centers are listed alphabetically by the state they are located in.  We realize there are many other capable clinicians/centers offering optimal care and could not begin to capture them all. This list reflects centers that work closely with the Oley Foundation. The Oley Foundation cannot endorse or refer members to individual physicians or medical centers, including those listed below. Questions, comments or additions can be sent to bishopj@mail.amc.edu. 

A separate page lists feeding programs that help children learn to eat by mouth

Mayo Clinic
Scottsdale,  Arizona

John DiBaise, MD                                                        HomePEN management
Phone: (480 301-6990)
Email: dibaise.john@mayo.edu                                     
 

UCLA Medical  Center
Home Parenteral Nutrition Program
Dupont Transplant Center
Los Angeles, California - (Brief Program Description)
                                                                HomePEN management, surgical reconstruction & intestinal transplantation

Marvin Ament MD, Director TPN Program
Laurie Reyen, RN, Clinical Nurse Specialist TPN  Program
Douglas Farmer, MD, FACS, Director Intestinal Transplant Program, Co-Director Intestinal Failure Center
Sue McDiarmid, MD, Director Pediatric Liver Transplant
Sherily Gordon, MD
Joanna Colangelo RN, Transplant Coordinator

Nutrition Program
(310) 825-4823
Email: nsler@mednet.ucla.edu
Transplant
(310)794-6487
Email: jcolangelo@mednet.ucla.edu      

www.healhcare.ucla.edu      

St Michael’s Hospital
Toronto Ontario Canada
Khursheed Jeejeebhoy, MD                                                    HomePEN management
Email: khushjeejeebhoy@compuserve.com

Georgetown University Center for Intestinal Care and Transplant*
Washington D.C.

Thomas Fishbein, MD, Director                                    HomePEN management, intestinal transplantation
Stuart Kaufman, MD, Medical Director
Erin Fennelly, RD, CNSD
(202) 444-6396
(866) 543-8977
http://www.georgetownuniversityhospital.org/body.cfm?id=115
e-mail:  EMF25@gunet.georgetown.edu                             

Mayo Clinic
Jacksonville, Florida
James Scolapio, MD                                                         HomePEN management  
Phone: (904) 953-2221                                                           
Email: scolapio.james@mayo.edu
 

University of Miami Miller School of Medicine
Jackson Memorial Transplant Center - (Brief Program Description)
Miami, Florida                                   Surgical reconstruction and intestinal transplantation

Andreas Tzakis, MD, Phd, Professor of Surgery, Director, Division of Transplantation, Chief, Division of Liver and Gastrointestinal Surgery

Seigo Nishida, MD , Associate Director, Adult Liver/GI Transplant..

Tomoaki Kato, MD, Associate Director, Pediatric Liver/GI Transplant

Teresa Bueno, RN
Email:TBueno@um-jmh.org
Scott Koonce, RN
Email: SKoonce@um-jmh.org
Lesli H. Kravetz, RN  
Email:LKravetz@med.miami.edu
Vivienne Maragh, RN 
EmailVMaragh@um-jmh.org

Phone: (305)355-5000                                                    

Children's Healthcare of Atlanta @ Egleston/ Emory Children's Center
Atlanta, Georgia (brief program description)

Conrad R. Cole M.D, M.P.H, M.Sc.                                Pediatric HomePEN
Surgical and Nutritional Management                                    
Megan Durham MD  - Surgery
Addie Lofton-Hammid RN  - Nurse Coordinator

Gastroenterology, Hepatology & Nutrition
Department of Pediatrics
Emory University School of Medicine

Phone: (404)778-2400 / (404)727-9990
http://www.pediatrics.emory.edu/divisions/gastroenterology/resource.html

Northwestern Intestinal Rehabilitation and Transplant Center
Northwestern University Feinberg School of Medicine,
Northwestern Memorial Hospital, and Children‘s Memorial Hospital
Chicago, Illinois     -      (Brief program description)

Jon Fryer, MD, Director, Adult Intestinal Transplant Program
Alan Buchman, MD, MSPH, Director, Adult Intestinal Rehabilitation Program
Valerie Cochran, MD, Director, Pediatric Intestinal Rehabilitation Program

Phone: (312)695-GUTS (4887)

www.gutfailure.com
www.ibdcenter.org

Email: a-buchman@northwestern.edu  HomePEN management, surgical reconstruction  & intestinal transplantation

The Intestinal Rehabilitation Center
at James Whitcomb Riley Hospital for Children/Indiana University
Indianapolis, Indiana  - (Brief program description)

Joel Lim, MD - Pediatric Gastroenterology
Alan Ladd, MD - Pediatric Surgery
Rodrigo Vianna, MD - Intestinal / multivisceral transplant

Phone: (317) 274-3774

Email:  jdlim@iupui.edu  - Provides comprehensive treatment of children with short bowel syndrome.

 

 

University of Louisville
Louisville, Kentucky

Steve McClave, MD                                                        HomePEN management
Phone:  (502) 852-7963                                                          
Email:  samcclave@louisville.edu

Children’s Hospital Boston -(Brief Program Description)
Boston, Massachusetts

Tom Jaksic, MD, PhD, Surgical Director                                    Intestinal reconstruction
Phone: (617) 355-9600
tom.jaksic@childrens.harvard.edu

 

Chiristopher Duggan, MD, MPH, Medical Director
Phone: (617) 355-7612
christopher.duggan@childrens.harvard.edu

Sharon Collier, RD - Dietitian
Kathleen Gura, PharmD, BCNSP - Pharmacist
Julie Iglesias, RN, MSN, CPNP - Nurse Practitioner - CAIR Coordinator
Daniel Kamin, MD - Medical Director - Intestinal Transplantation
Heung Bae Kim, MD - Surgical Director - Intestinal Transplantation
Clifford Lo, MD, PhD - Home Parenteral Nutrition Physician
Mark Pudder, MD - Surgeon
Denise Richardson, RN - Home Parenteral Nutrition Nurse

Mayo Clinics
Rochester, Minnesota   - (Brief Program Description)

Darlene Kelly, MD PhD, Associate Professor of Medicine                     HomePEN management
Phone: (507)284-4824
Email: Kelly.darlene@mayo.edu

http://www.mayoclinic.org/                                 

University of Nebraska Medical Center Intestinal Rehabilitation Program
Omaha, Nebraska  -  (Brief program description)

Surgeon
David F. Mercer MD, PhD, FRCS(C) Director, Intestinal Rehabilitation Program  
Stephen Raynor MD
Jon Thompson MD
Hepatologist
Fedja Rochling MD, Medical Director, Adult Intestinal Rehabilitation Program Transplant  
Nurse Coordinator
Brandi K. Gerhardt RN, BAN
Jenna Kopp RN, BAN                                          Surgical, nutritional management & intestinal transplantation
Dietitian
Angie Iverson RD
Brandy Sunderman RD
Becky Weseman RD, SNSD, LMNT
Feeding Therapy
Cathleen Piazza PhD
Valerie Volkert PhD, BCBA
Social Work
Jodi Gentleman
Administrative
Bridget Bauman

Phone: (402)559-3382
Email: organ@unmc.edu

http://www.nebraskamed.com/transplant/intestine/rehabilitation_program/

Memorial Sloan Kettering Cancer Center
New York, New York

Moshe Shike, MD                                                         HomePEN management
Phone: (212) 639-7230                                                           
Email: shikem@mskcc.org

Mount Sinai School of Medicine
Recanati/Miller Transplantation Institute
Intestinal Rehabilitation and Transplantation Program
New York, New York

Kishore Iyer, MD                               Surgical, nutritional management &intestinal transplantation
Director, Adult & Pediatric Intestinal Transplant
Email:  Kishore.Iyer@mountsinai.org
Darlene Capolupo RD, Nutrition Coordinator, Intestinal Rehabilitation and Transplantation
Email: Darlene.surillo@msnyuhealth.org
Phone: (212)659-9300

www.mssm.edurmti/intestineprog.shtml

Cleveland Clinic Foundation
Intestinal Rehabilitation Program and Transplant Program
Cleveland, Ohio   - (Brief Program Description)   
Medical and nutritional management of intestinal failure, HomePEN management, Intestinal transplantation and surgical reconstruction

Donald Kirby, MD FACP, FACN, FACG, AGAF, CNSP, CPNS, Director, Nutrition Support; Medical Director, Intestinal Rehabilitation and Transplant
Ezra Steiger, MD, FACS, CNSP, Co-Director, Nutrition Support Team and Rehabilitation Program
Email:  steigee@ccf.org
Le-Chu Su, MD, PhD, Gastroenterologist, Digestive Disease Center
Cristiano Quintini, MD, Small Bowel Transplant Surgeon, Intestinal Rehabilitation and Transplantation Program
Neha Parekh, MS, RD, LD, CNSD, Nutrition Manager, Intestinal Rehabilitation
Emily Chhatriwalla, RD, LD, CNSD, Nutrition Coordinator, Intestinal Rehabilitation and Transplantation Program
Mary Jo Porter, RD, LD, Nutrition Coordinator, Intestinal Rehabilitation and Transplantation Program
Elizabeth Lennon, PA-C, Physician Assistant, Intestinal Rehabilitation and Transplantation Program
Christine Shay-Downer, RN, Transplant Coordinator, Intestinal Rehabilitation and Transplantation Program 
Jackie Lazzaro, Department Coordinator, Intestinal Rehabilitation and Transplantation Program
Intestinal Rehabilitation Program phone: (216)445-2090
Intestinal Transplant phone: (216) 445-1748
Website: http://cms.clevelandclinic.org/digestivedisease/body.cfm?id=119 

Nationwide Children’s Hospital
Columbus, Ohio

Jane Balint, MD    Phone: (614) 722-3450                            HomePEN management Peds.GI  
 

Cincinnati Children’s Hospital Medical Center Nutrition & Intestinal Care Center
Cincinnati, Ohio      - (brief program description)

Samuel Kocoshis MD, Medical Director                       HomePEN management
Email: Samuel.kocoshis@cchmc.org

Surgeons:

Maria Alonso, MD
Frederick Ryckman, MD
Gerry Hennies, RN
Kim Klotz, RN
Kathie Yeary, RN
Trayce Gardner, MEd, RD, CSP, LD
Susan Smith, RD, LD, CNSD
Renee Wieman, RD, CSP, LD, CNSD

Phone: (513)636-4415                                   

http://intestinaltransplant,upmc.com                   
www.cincinnatichildrens.org/svc/alpha/n/nutrition-intestine

Children’s Hospital of Pittsburgh
Intestinal Care Center
Pittsburgh, Pennsylvania
 Surgical reconstruction & intestinal transplantation

Edward Barksdale, JR., MD, Co-Director, Pediatric Surgery
Robert Squires, Jr, MD, Co-Director, Gastroenterology
Anita Nucci, PhDm RD, LDN, Manager, Clinical Nutrition/Nutrition Support & Intestinal Care Center

Phone: (412)692-6906         

Malnutrition Clinic
Centre Medical Surgical Associates
Mount Nittany Medical Center
Pennsylvania State University
State College, Pennsylvania

Gordon L. Jensen, MD, PhD                                        HomePEN Management

Phone: (814) 234-8800
Email: GLJ1@psu.edu
Webpage: http://www.cnetremedsurg.com    

University of Pittsburgh Medical Center
Thomas E. Starzl Transplantation Institute
Intestinal Rehabilitation and Transplant Center*
Pittsburgh,  Pennsylvania     -       (Brief Program Description)

                                                        HomePEN management, surgical reconstruction  & intestinal transplantation

George Mazariegos, MD, Co-Director, Pediatric Transplant
Kareem Abu-Elmagd, MD, PhD, FACS, Director, Intestinal Rehabilitation and Transplantation Center
Stephen J.D. O’Keefe, MD, MSc, FRCP, Medical Director, Small Bowel Transplantation and Rehabilitation Unit
Laura E. Matarese, MS, RD, LDN, FADA, CNSD, Director of Nutrition, Intestinal Rehabilitation and Transplant Center

Phone: (412)647-5800
Email: www.sti.upmc.edu
http://intestinaltransplant,upmc.com       

Medical University of South Carolina
Charleston, South Carolina

Prabhakar Baliga, MD                                                                   HomePEN management
Debra Bernardina RN, CCTC
Kara Cole RN, MSN
Stacy Sipple, RN
Christina Thompson RN

Phone: (843) 792-0332                                                           

Vanderbilt University Medical Center (VUMC)
Center for Human Nutrition
Nashville, Tennessee

Doug Seidner, MD, FACG, CNSP                                                   HomePEN management
Director HomePEN Program
Phone: (615) 936-1288
douglas.seidner@vanderbilt.edu

Vanessa J. Kumpf, PharmD, BCNSP
Clinical Pharmacy Specialist
Phone: (615) 936-1288
vanessa.kumpf@vanderbilt.edu

http://www.mc.vanderbilt.edu/vchn


LDS Hospital
Salt Lake City, Utah
Tom White, MD                                                            HomePEN management
Phone: (801) 507-2030
                   

University of Virginia
Health System Digestive Health Center of Excellence
Charlottesville, Virginia

Carol Parrish RD, MS                                HomePEN management           
Phone: (434)924-9582

http://www.healthsystem.virginia.edu/internet/digestive-health/nutrition.cfm

go to GI Nutrition – outpatient clinic                                        
Email: crp3a@virginia.edu

University of Seattle
Seattle,  Washington

Jorge Reyes, MD
Simon Horslen, MD                                                                 HomePEN management Peds GI, Transplantation

On the Move!  We promise to keep the list current.  We also invite you to contact us at any time for additional information, to brainstorm options, etc.   

 Thank you to Carol Parrish, RD, University of Virginia Health Care Systems, for publishing Centers with Short Bowel Expertise in Practical Gastroenterology which became the centerpiece for this effort. 

Last Updated:  September 24, 2009