About the Oley Foundation

Founded in 1983 by Lyn Howard, MD and her patient, Clarence "Oley" Oldenburg, the Oley Foundation is a national, independent, non-profit 501(c)(3) organization that provides information and psycho-social support to consumers of home parenteral (IV) and enteral (Tube-fed) nutrition (homePEN), helping them live fuller, richer lives. The Foundation also serves as a resource for consumer's families, homePEN clinicians and industry representatives, and other interested parties. Programs are directed by the staff and guidance is provided by a board of dedicated homePEN professionals and patients.

Click here for a copy of the Oley Foundation's bylaws or most recent IRS 990 form.

Oley Programs:

  • LifelineLetter: a bi-monthly newsletter with articles about medical advances and personal experiences, written for homePEN consumers,

  • Regional Coordinator Network: a national grassroots network of 50+ volunteers — all homePEN consumers or caregivers — who run support groups and provide outreach and education at the local level

  • National and Regional Conferences: opportunities for homePEN consumers, clinicians, providers and industry representatives to share support and information

  • Information Clearinghouse: a resource designed to answer questions about homePEN through a toll-free hotline,Web site, online education program, video/dvd library and links to other organizations.  

  • Consumer Networking: online chat forum  and toll-free calls to experienced homePEN consumers and caregivers

  • Equipment/Supply Exchange: a program that provides patients with free supplies and equipment donated by members who no longer need them.

Don’t miss our other popular web pages that provide tips for traveling and swimming, opportunities to participate in research , and helpful printed materials (for a complete list see the “Resources” drop-down menu).

 If you would like to receive the newsletter and other timely updates from Oley, join today!  It’s free of charge for patients and their families. It's also free for clinicians and industry members who choose to receive the newsletter via email.

Start-up funds for the Oley Foundation were provided by the Oldenburg family. Ongoing support comes from homePEN families, friends, clinicians and corporations.

Support Oley Programs

For more information on how you can support Oley programs, click on the following links or contact Joan Bishop or Roslyn Dahl at (800) 776-OLEY, bishopj@mail.amc.edu, dahlr@mail.amc.edu:

Contributions are always needed to continue the Foundation's work.

The Oley Foundation does not accept advertisements on its web site.


Allocation of Annual Support
 
63% Education/Outreach/Research
24% Reserves
13% Administration, Development
 
 
Last updated 11/13/09